Institute for Patient- and Family-Centered Care
Transforming health care through partnerships

Selected Bibliography

Abraham, M., Ahmann, E., & Dokken, D. (2013). Words of advice: A guide for patient, resident, and family advisors. Bethesda, MD: Institute for Patient- and Family-Centered Care.

Adams, J. G., Green, A. L., Towe, S., & Huett, A. (2013). Bereaved caregivers as educators in pediatric palliative care. Journal of Palliative Medicine, 16(6), 609-615.

Blaylock, B., Ahmann, E., & Johnson, B. H. (2002). Creating patient and family faculty programs. Bethesda, MD: Institute for Patient- and Family-Centered Care.

Brault, I., Vanier M. C., Dumez, V., Towle, A., Godolphin, W., Pittenger, A. L., . . . Collins L. (2016). Partnering with patients in interprofessional education in Canada and in the USA: Challenges and strategies. In D. Forman, M. Jones, & J. Thistlethwaite (Eds.), Leading research and evaluation in interprofessional education and collaborative practice (pp. 329-353). Basingstoke, Hampshire, UK: Palgrave Macmillan UK.

Crocker, L., & Johnson, B. (2014). Privileged presence: Personal stories of connections in health care. Boulder, CO: Bull Publishing Company.

Dokken, D. L., Buell, L. D., & Rushton, C. H. (2010). Families as educators: Guidance for implementation. (Free download available at: Click on “Families as Educators”)

Dokken, D., Moretz, J., & Black, J. (2007). The many roles of family members in “family-centered care” – Part V. Pediatric Nursing, 33(4), 356-358.

Fiddes, P. J., Brooks, P. M., & Komesaroff, P. (2013). The patient is the teacher: Ambulatory patient-centred student-based interprofessional education where the patient is the teacher who improves patient care outcomes. Internal Medicine Journal, 43(7), 747-750.

Fulmer, T., & Gaines, M. (2014). Partnering with patients, families, and communities to link interprofessional practice and education. New York, NY: Josiah Macy Jr. Foundation.

Interprofessional Education Collaborative Expert Panel. (2011). Core competencies for interprofessional collaborative practice: Report of an expert panel. Washington, DC: Interprofessional Education Collaborative.

Interprofessional Education Collaborative. (2016). Core competencies for interprofessional collaborative practice: 2016 update. Washington, DC: Author.

Johnson, B. H. (2016). Promoting patient- and family-centered care through personal stories. Academic Medicine, 91(3), 297-300.

Johnson, B. H., & Abraham, M. R., (2012). Partnering with patients, residents, and families: A resource for leaders of hospitals, ambulatory care settings, and long-term care communities. Bethesda, MD: Institute for Patient- and Family-Centered Care.

Josiah Macy Jr. Foundation. (2016).Delivering interprofessional education and teaching teamwork . New York: Author. Available from

Kratchman, A., Barkman, D., Conaboy, K., de la Motte, A., & Biblow, R., (2015). The Children’s Hospital of Philadelphia Family Partners Program: Promoting child and family-centered care in pediatrics. Patient Experience Journal, 2(1), 50-60.

Kumagai, A. (2009). The patient’s voice in medical education: The family centered experience program. American Medical Association Journal of Ethics, 11(3), 228-231.

Lippitt, G. L. (1982). Organizational renewal: A holistic approach to organization development. Englewood Cliffs, NJ: Prentice-Hall, Inc.

Marshall, M., & Gordon, F. (2010). Exploring the role of interprofessional mentor. (2010). Journal of Interprofessional Care, 24(4), 362-374.

Minihan, P. M., Bradshaw, Y. S., Long, L. M., Altman, W., Perduta-Fulginiti, S., Ector, J., . . . Sneirson, R. (2004). Teaching about disability: Involving patients with disabilities as medical educators. Disability Studies Quarterly, 24(4).

Minniti, M., & Abraham, M. R. (2013). Essential allies – Patient, resident, and family advisors: A guide for staff liaisons. Bethesda, MD: Institute for Patient- and Family-Centered Care.

Parent, K., Jones, K., Phillips, L., Stojan, J. N., & House, J. B. (2016). Teaching patient- and family-centered care: Integrating shared humanity into medical education curricula. American Medical Association Journal of Ethics, 18(1), 24-32.

Puvanendran, R., Vasanwala, F. F., Kamei, R. K., Hock, L. K., & Lie, D. A. (2012). What do medical students learn when they follow patients from hospital to community? A longitudinal qualitative study. Medical Education Online, 17. doi:

Reeves, S., Fletcher, S., Barr, H., Birch, I., Boet, S., Davies, N., . . . Kitto, S. (2016). A BEME systematic review of the effects of interprofessional education (update). BEME Guide No. 39. Medical Teacher, 38(7), 656-668.

Solomon, M. Z., Browning, D. M., Dokken, D. L., Merriman, M. P., & Rushton, C. L. (2010). Learning that leads to action: Impact and characteristics of a professional education approach to improve the care of critically ill children and their families. Archives of Pediatrics and Adolescent Medicine, 16(4), 315-322.

Shiyanbola, O. O., Lammers, C., Randall, B., & Richards, A. (2012). Evaluation of a student-led interprofessional innovative health promotion model for an underserved population with diabetes: A pilot project. Journal of Interprofessional Care, 26, 376-382.

Teodorczuk, A., Khoo, T. K., Morrissey, S., & Rogers, G. (2016). Developing interprofessional education: Putting theory into practice. The Clinical Teacher, 13(1), 7-12.

Towle, A., Brown, H., Hofley, C., Kerston, R. P., Lyons, H., & Walsh, C. (2014). The expert patient as teacher: An interprofessional health mentors programme. The Clinical Teacher, 11(4), 301-306.

Towle, A., Farrell, C., Gaines, M. E., Godolphin, W., John, G., Kline, C., . . . Thistlethwaite, J. (2016). The patient’s voice in health and social care professional education. International Journal of Health Governance, 21(1), 18-25.

Weinberger, S. E. (2014). Patient- and family-centered medical education: The next revolution in medical education? Annals of Internal Medicine, 161(1), 73-75.

World Health Organization (2010). Framework for action on interprofessional education and collaborative practice. Geneva: Author.