Beverley H. Johnson, BSN, FAAN, President and CEO, IPFCC
Beverley H. Johnson has provided training and technical assistance to over 300 hospitals, health systems, primary care practices, hospital associations, and federal, state, and provincial agencies. She has authored many publications on patient- and family-centered approaches to care, professional education, and research.
Bev currently serves on the Selection Committee for the AHA Quest for Quality Prize and is a member of the Board of Directors of the Patient-Centered Primary Care Collaborative and the Association of American Medical Colleges. She was a member of the inaugural Advisory Board for the Center for Patient Partnership of the American College of Physicians.
Bev is the recipient of The Gravens Award for leadership in promoting optimal environments and developmental care for high-risk infants and their families, and The Changemaker Award by the Board for the Center for Health Care Design. In 2017, she was recognized by the American College of Physicians with the Edward R. Loveland Memorial Award. In 2018, she was inducted as a fellow into the American Academy of Nursing.
Bev, working as an individual or with interdisciplinary teams and patient and family advisors, has conducted organizational assessments, and assisted hospitals, health systems, and ambulatory programs with leadership development, changing the culture of an organization, facilitation of visioning retreats, and the integration of patient- and family-centered concepts in policies, programs, and practices, as well as in facility design, the education of health care professionals, and research and evaluation. She has helped hospitals change the concept of families as visitors, partner with patients and families to enhance quality and safety and reduce readmissions, and implement patient and family engagement strategies at all levels of the organization.
Bev has extensive experience as a public speaker, providing keynote and plenary sessions, participating on panel discussions, and facilitating interactive workshops and other breakout sessions.
Marie Abraham, MA, Vice President, Programming and Publications, IPFCC
Since joining IPFCC in 1996, her work includes providing consultation to hospitals and health care systems that are working toward patient- and family-centered change and building partnerships with patients and families to improve and redesign health care; developing resource materials and toolkits, co-authoring publications; and serving as lead planner and faculty member for IPFCC conferences, seminars, webinars, and other training efforts. Marie was the project lead for a PCORI-funded project, “Creating Capacity for Sustainable Partnerships with Patients and Families in Research” and a second PCORI-funded project, “Strengthening Diversity in Research Partnerships: Knowledge to Action.” Marie also leads IPFCC’s work as a subcontractor to the CMS Hospital Improvement Innovation Network (HIIN) Patient and Family Engagement Support Contractor. She serves as faculty and consultant for the Vermont Oxford Network, and has served as consultant for the National Initiative for Children’s Healthcare Quality and the Institute for Healthcare Improvement. As project staff for two grants funded by the Agency for Healthcare Research and Quality, Marie ensured patient and family participation in key stages of the research process and that deliverables would be valuable and meaningful to patients and families. She served for nine years on a parent advisory group for the American Academy of Pediatrics.
Pam Dardess, MPH, Vice President, Strategic Initiatives & Operations, IPFCC
Pam provides consultation and training to health care organizations; serves as faculty for IPFCC seminars, webinars, and meetings; and assists with strategic planning to scale up the practice of patient- and family-centered care. Prior to joining IPFCC, Pam was a principal researcher at the American Institutes for Research (AIR) where her work focused on stakeholder engagement; patient-centered measurement; and the development, implementation, and evaluation of strategies and interventions to promote patient and family engagement (PFE). While at AIR, Pam led work to develop and evaluate the Agency for Healthcare Research and Quality-funded Guide to Patient and Family Engagement in Hospital Quality and Safety. She also directed a project to provide PFE-related training and technical assistance to the Hospital Improvement Innovation Networks (HIINs) and their member hospitals as part of CMS’s Partnership for Patients initiative.
Outside of work, Pam enjoys hiking, being a Girl Scout leader, and following professional cycling. Pam lives in North Carolina with her husband and two daughters.
Deborah Dokken, MPA, Coordinator, Patient and Family Partnerships, IPFCC
Deborah is a family leader whose passion for healthcare improvement grew out of personal experiences, including the loss of two infants and her husband’s long battle with a rare cancer.
Since 2014, Deborah has had a key role in IPFCC’s Better Together: Partnering with Families, a national campaign to enhance the role of family members in improving the care and safety of hospitalized patients. She was also the lead for IPFCC’s project, “The Study of New York Hospital PFACs and PFAs: Prevalence and Functioning.” In this role, Ms. Dokken led the development of a survey assessing the prevalence and functioning of PFACs across New York State, conducted qualitative interviews, worked closely with the research team, and was one of the authors of the Study’s report. Previously, Deborah was Associate Director of the Initiative for Pediatric Palliative Care (IPPC), a national project focused on improving care for children with life-threatening conditions and their families through education and quality improvement. She trained and supported family members involved in the project; helped develop a 25-hour curriculum; served as faculty for 22 educational retreats; collaborated with researchers in designing and implementing an impact study; and co-authored an article with study results, published in the Archives of Pediatrics and Adolescent Medicine.
Deborah has been a member of committees of the IOM, the FDA, and NIH and has also served on a hospital PFAC and a pediatric ethics committee. She is the author of several articles related to family-centered health care and is co-editor of Pediatric Nursing journal’s “Family Matters” section.
Prior to Deborah’s health care work, she had years of nonprofit management experience in strategic planning, marketing, staff and volunteer development, and training. Since downsizing from her home of 20+ years, Deborah enjoys urban, apartment living and exploring good food and wine!
Mary Minniti, BS, CPHQ, Senior Policy and Program Specialist, IPFCC
Mary Minniti is a Certified Professional in Healthcare Quality with over 30 years experience in the field. She joined IPFCC in 2011 and currently works as a Senior Policy and Program Specialist. Mary works on a variety of national projects and initiatives including CMS’s Hospital Improvement Innovation Networks, CMS Transforming Clinical Practice Initiative (TCPI) and a PCORI-funded study on advance care planning in primary care. In the TCPI effort, she serves as the lead for IPFCC collaboration with the PCPCC SAN, developing webinar and video tools on patient and family engagement especially in the quality and safety arena. She works with the ACP SAN providing technical assistance to PTNs and practices on implementation of key person and family engagement strategies as well as development of on-line training modules.
Mary was actively involved in Oregon’s health care reform work, particularly related to primary care transformation. Serving on key state committees, she led efforts to integrate patients and families into clinic redesign efforts. The recommendations of a taskforce she led established the Patient Centered Primary Care Home (PCPCH) Technical Institute, which serves to support clinics across Oregon in meeting PCPCH standards. During her tenure with PeaceHealth, she worked in a variety of settings leading innovation projects across the continuum of care with an emphasis on partnerships for quality and safety.
Her passion is bringing patients and family members into conversations about health care transformation because of the positive and powerful impact it creates for all involved.
Ushma Patel, MSPH, PMP, Director for Special Projects and Educational Programs
Ushma provides overall direction, management, and coordination for IPFCC educational programs and other special projects. Prior to joining IPFCC, Ushma was a senior project specialist at the American Institutes for Research (AIR) where she contributed to survey development, program implementation and evaluation, and explaining evidence-based medicine to consumers and clinicians. Ushma is a certified project management professional and is trained in cognitive interviewing and focus groups. While at AIR, Ushma provided technical assistance to the Hospital Improvement Innovation Networks and their member hospitals as part of CMS’s Partnership for Patients initiative. She was also an integral part of the development, implementation and evaluation of the Agency for Healthcare Research and Quality-funded Guide to Patient and Family Engagement in Hospital Quality and Safety.
As a preeclampsia survivor and patient advocate, Ushma volunteers for the Preeclampsia Foundation as a member of their Patient Advisory Council and for the PCORI 4th Trimester Project. Ushma lives in North Carolina with her husband and two children – one of which has a genetic condition and a congenital heart defect.
Maureen Connor, RN, MPH, Healthcare Consultant, Claremont Healthcare Consulting
Maureen Connor, RN, MPH, is a healthcare consultant with Claremont Healthcare Consulting, in Arlington, MA focusing on quality improvement, patient safety, and patient- and family-centered care. She is the former Executive Director of Quality and Safety for Patient Care Services at North Shore Medical Center (NSMC) in Salem, MA, a member of Partners HealthCare. Prior to joining NSMC, Maureen served as Vice President for Quality Improvement and Risk Management at the Dana-Farber Cancer Institute (DFCI) and Director of Quality Improvement at the Dana-Farber/Brigham and Women's Cancer Center, Boston.
At DFCI, Maureen played a major role in integrating patient safety into the culture of this academic medical center, collaborating with patients and family members from DFCI's patient and family advisory councils. She is a co-author of the consensus statement, When Things Go Wrong: Responding to Adverse Events, written to support the Harvard affiliated hospitals in communicating with patients and families about errors and adverse events.
Maureen worked with the MA Coalition for the Prevention of Medical Errors to assist health care organizations throughout Massachusetts in implementing state-mandated patient and family advisory councils. In addition, she was a co-investigator of a study that measured the impact of patients' participation in Patient Safety Rounds in the ambulatory clinics at DFCI and also a study on oral chemotherapy safety in ambulatory oncology. She has presented nationally and has published several articles on patient- and family-centered care.
Cherie A. Craft, MEd, CEO/Founding Executive Director, Smart from the Start
Having grown up in a housing project in inner city of Boston, Cherie Craft possesses a passionate commitment to bettering the lives of children and families, “at-risk.” Having earned a BS in Sociology and a MEd in Counseling Psychology, Cherie gained much of her early professional experience working in the Department of Pediatrics at Boston Medical Center, formerly Boston City Hospital. Initially recruited as a Family Advocate/Case Worker, before being recruited to lead the movement toward family-centered care, where her program, Parents as Partners, recruited, trained, and supervised diverse parent advocates from the community. She and her advocates taught the principles and practices of family-centered care to medical students and residents.
Cherie then went on to work closely with SAMSHA, US Administration for Children and Families and the Federation of Families for Children’s Mental Health, on a number of community-based outreach, education and evaluation initiatives. Currently employed as the CEO/Founding Executive Director of Smart from the Start, in Boston and Washington, DC, she leads programs, which recognize and build on the strengths of individuals and families despite their challenges, and creates opportunities for them to take their place at the table and for their voices to be heard.
For 17 years, Cherie has served as senior faculty with IPFCC, and sits on the Community Advisory Board of Boston Children’s Hospital. She has served two terms on the National Expert Panel on Substance Abuse and Child Welfare, and has been widely recognized as a leading authority on cultural competence, community engagement and empowerment, and family support. She presents both nationally, and internationally as an advocate for children and families.
Liz Crocker, MEd, Patient Advocate; Vice President, IPFCC
Liz Crocker is a businesswoman, writer, and teacher.
Liz has worked as a Simulated Patient and Clinical Teaching Associate with the Dalhousie School of Medicine. She is one of the founding owners of Woozles, the oldest children's bookstore in North America (founded in 1978), co-founder of Frog Hollow Books (sold in 1987) and co-founder of P'Lovers, a network of environmental stores (sold in 2014).
Liz established and directed a large Child Life Program at the IWK Children's Hospital, which developed an international reputation of excellence. She served as Treasurer and President of the Association for the Care of Children’s Health and President of the Canadian Institute of Child Health.
Liz is deeply committed to improving the quality and safety of all health care interactions and currently serves as an Honorary Trustee of the IWK Hospital Foundation; Secretary of Hospice Halifax; Board Member of Saskatchewan’s Health Quality Council; and Vice-Chair and Board Member of IPFCC.
Liz is the author of two children's books and hundreds of articles in books, magazines, and newspapers. In 2006, along with Bev Johnson (IPFCC President/CEO), she co-authored Privileged Presence, which is a collection of stories about experiences in health care with a focus on communication, collaboration, and compassion. A second edition was published in 2014. She also edited the book, The Healing Circle: Reclaiming Wholeness on the Cancer Journey, Integrating Science, Wisdom and Compassion, which was published in 2010. Her most recent book, published in 2017, is titled Transforming Memories: Sharing Spontaneous Writing Using Loaded Words.
Liz has been a broadcaster and journalist, worked in the political arena, been a teacher and mentored young entrepreneurs. She enjoys speaking about the power of health care stories, the value of writing, and the importance of clear and compassionate communication.
Susan Grant, RN, MS, FAAN, Executive Vice President & Chief Nursing Officer, Beaumont Health
Susan Grant is executive vice president and chief nursing officer at Beaumont Health. Beaumont is a not-for-profit organization formed by Beaumont Health System, Botsford Health Care and Oakwood Healthcare in southeast Michigan and consists of eight hospitals with 3,337 beds, 168 outpatient sites, 10,000 nurses, 5,000 physicians, 35,000 employees and about 3,500 volunteers.
Grant joined Beaumont in 2015 to oversee the nursing practice for the 10,000 nurses across Beaumont and to lead the organization’s strategic initiative around patient and family centered care. She came from Emory Healthcare in Atlanta, where she served as chief nurse executive and chief patient services officer since 2006. Under her leadership, Emory Healthcare created an enterprise-wide patient and family advisory program with over 250 patient and family advisors and Emory University Hospital achieved its first Magnet designation, and Emory Saint Joseph’s Hospital achieved its fifth designation.
Prior to joining Emory, Grant was chief nursing officer and senior associate administrator for patient care services at the University of Washington Medical Center in Seattle and chief of nursing and patient care services at the Dana-Farber Cancer Institute in Boston. She led the successful implementation of patient and family advisory programs at both institutions.
Grant earned a Bachelor of Science in Nursing at the Medical College of Georgia, master’s degree in psychiatric and community mental health nursing at the University of South Carolina and recently completed her doctorate in nursing practice at Vanderbilt University.
Terry Griffin, MS, APN-BC, Neonatal Nurse Practitioner, St. Alexius Medical Center, Hoffman Estates, IL
Terry Griffin is a Neonatal Nurse Practitioner at St. Alexius Medical Center in Hoffman Estates, IL where she was recognized as the impetus behind creating a family centered care NICU. She has worked at Rush University Medical Center in Chicago and has held faculty positions at the Graduate College of Nursing at the University of Illinois at Chicago. Her clinical experience is in the NICU as a staff nurse, Clinical Nurse Specialist, and as a Neonatal Nurse Practitioner; however, her specialty is patient- and family-centered care.
Terry’s area of interest is the relationship among staff, patients, and families. She has published and presented on many nursing topics, including partnerships with parents, transition to home, challenges that nurses and families face caring for babies in the NICU. She co-authored a book with a family leader on family-centered care for the newborn. Her research has examined the parental response to prenatal tours of the NICU and safety of parental involvement in the care of their hospitalized infants. Terry is a member of the National Association of Neonatal Nurses and has given many years of service to the March of Dimes, Chicago Chapter.
Carole Groux, Consulting Faculty
Carole serves as faculty consultant on projects involving health care and behavioral health organizations. She brings a particular expertise in promoting community wellbeing. Carole is a seasoned mental health professional and engineer with a Six Sigma Green Belt in Healthcare from Johns Hopkins Armstrong Institute. Carole joined IPFCC’s consulting team from Johns Hopkins Health Systems’ Sibley Memorial Hospital where she was the manager of patient experience and oversaw process improvement utilizing lean and design thinking.
In 2009 Carole founded the FH Coalition, a community youth substance abuse prevention organization that utilizes the National Coalition Academy’s Seven Strategies for Community Change. This coalition continues to receive national recognition for its work. She has led individual, family, couples’ and group therapy in settings ranging from inpatient behavioral health to community agencies and clinics. Carole served as a volunteer advisor for Walter Reed on the inaugural National Capital Region’s Military Market Board.
Roslyn Marshall, RN, BSN, MHSA, Nurse Manager, Neuroscience Center, Augusta University Medical Center
Roslyn Marshall is responsible for the day-to-day management of a 20-bed Neurosciences Intensive Care Unit, a 16-bed general care unit, and the ambulatory adult and pediatric neurology/neurosurgery, Multiple Sclerosis, ALS, EMG, Gamma Knife Program and Movement Disorders practice sites. The Neuroscience Center is widely recognized as a model for patient- and family-centered care.
Roslyn’s area of interest is partnering with patient advisors and leading staff in partnerships with patients and families. She serves as a champion for patient- and family-centered care in her hospital. She is the recipient of the health system's 2000 Nurse of the Year Award, 2004 Nursing Employee of the Year Award, 2004 RN of the Year Award and the 2006 Family Choice Award. She is also the first recipient of the prestigious, Pat Sodomka Leadership Award, in recognition of an international pioneer in Patient and Family Centered Care.
Roslyn has presented extensively on patient- and family-centered care at international conferences, the Institute for Healthcare Improvement, and the Case Management Society of America's National Conference. She has served as Faculty for IPFCC since 2008.
Julie Ginn Moretz, Family Leader/Chief Experience Officer / AVP, Patient- and Family-Centered Care, Augusta University Medical Center
In May 2017, Julie Ginn Moretz rejoined Augusta University Medical Center (AUMC) as Chief Experience Officer/AVP, Patient- and Family-Centered Care, bringing her career full circle. Inspired by her son’s battle with heart disease, Julie came to this work nearly two decades ago as a volunteer family leader at AUMC (formerly, Medical College of Georgia). Early on, as her young son underwent a dozen heart surgeries and heart transplant, Julie recognized that she and her husband, David, must be key players on his health care team for continuity of care and best possible outcomes.
Julie worked in partnership with health care leaders and clinicians to evaluate outdated policies and procedures that impacted health outcomes and patient experience. She then became Director of Family Services Development, supporting both adult and pediatric services. She oversaw patient/family advisory councils, developed the Family Faculty program to incorporate PFCC concepts in medical and health professions education, and designed patient and family engagement strategies to improve the quality of care and patient experience.
Before returning to Augusta, Julie was associate Vice Chancellor for Patient- and Family-Centered Care at the University of Arkansas for Medical Sciences (UAMS) in Little Rock, AR where she had overall leadership responsibility for developing clinical and academic programs related to PFCC. Prior to her role at UAMS, Julie was IPFCC’s Director of Special Projects for nearly seven years, working on a variety of projects to develop partnerships among health professionals, patients, and families.
Julie and her husband have three children, Lee, Morgan, and Daniel (forever 14).
Kelly Parent, Vice President for the Patient and Family Experience, Beaumont Health System
Kelly Parent has more than a decade of experience leading patient and family engagement efforts across clinical, education, research, and quality and safety venues. In 2006, Kelly began volunteering as a Family Advisor at C.S. Mott Children’s Hospital in Michigan and was then hired as the first PFCC Program Manager at Michigan Medicine. Kelly also served as family faculty and consultant for IPFCC and was hired as Program Specialist for Patient and Family Partnerships in 2015. Currently as the Vice President for the Patient and Family Experience at Beaumont Health System, Kelly is leading efforts to create high quality, safe, and satisfying experiences for patients and families across the health care continuum.
Jeffrey Schlaudecker, MD, MEd, Associate Professor of Family Medicine, Kautz Family Foundation Endowed Chair of Geriatric Medical Education, The University of Cincinnati
Jeff Schlaudecker, MD, MEd, majored in Human Communication Science at Northwestern University and studied medicine at the University of Cincinnati College of Medicine. Following residency training in family medicine and a clinical fellowship in geriatric medicine, he began working with The Christ Hospital/University of Cincinnati Family Medicine Residency Program and Geriatric Medicine Fellowship as a geriatric hospitalist in 2007.
Dr. Schlaudecker became interested in patient- and family-centered care early in his training, and his question of how to apply interprofessional bedside rounding techniques to his geriatric patients served as the basis for his current HRSA Geriatric Academic Career Award and research support from the Donald W. Reynolds Foundation. He is an Associate Professor of Family and Community Medicine, and serves as the Geriatric Medicine Fellowship Program Director and Medical Director of The Christ Hospital Acute Care for Elderly (ACE) Unit. Jeff also completed his Master's in Education (MEd) with a focus on Adult Learning Theory in the fall of 2013. He was named the Kautz Family Endowed Chair of Geriatric Medicine Education in October 2014.
Juliette Schlucter, Director, Center for Child and Family Experience, Sala Institute for Child and Family-Centered Care, Hassenfeld Children’s Hospital of New York at NYU Langone Medical Center
Leveraging over two decades of leadership experience, Juliette Schlucter speaks and consults on patient and family-centered care assessment, programming design and implementation to advance quality, safety, education and the experience of care. Juliette has served as Faculty for IPFCC since 1996. From 1995 through 2010, Juliette provided leadership for hospital-wide implementation of patient- and family-centered care at The Children's Hospital of Philadelphia. In this role, Juliette created The Promise of Partnership, a toolkit used to teach health care professionals best practice behaviors for patient and family-centered care. She co-created the Family Faculty, established the Family Advisory Council, developed the Family-Centered Intern program and designed a Patient and Family Advisor training curriculum.
Juliette has authored and served as contributing author for numerous publications, including Partnering with Patients and Families to Design a Patient- and Family-Centered Health Care System. She has served on advisory councils for the Accreditation for Graduate Medical Schools, the Association of American Medical Colleges and the National Academies of Medicine.
Juliette came to her work, over 22 years ago, following the diagnosis of both her son and daughter with Cystic Fibrosis.
William Schwab, MD, Professor and Vice Chair, Department of Family Medicine and Community Health, University of Wisconsin School of Medicine and Public Health
Bill Schwab is Professor and Vice Chair of the Department of Family Medicine and Community Health at the University of Wisconsin School of Medicine and Public Health. In addition to being an active clinician and teacher, he has had leadership roles within the DFMCH in clinical operations, residency education, and rural health. He has also served as a member of the Board of Directors of the group practice organization for the more than 1300 medical school faculty clinicians at the University of Wisconsin.
A nationally recognized leader in patient- and family-centered care as well as in medical education about the care of children and adults with chronic illness and disabilities, Bill is a frequent speaker and consultant to health systems, medical schools, and community agencies around the country. He has been the principal investigator of research projects funded by the federal Maternal and Child Health Bureau, and the U.S. Centers for Disease Control and Prevention. Bill has been the recipient of the Humanism in Medicine Award from the Society of Teachers of Family Medicine jointly with the Arnold P. Gold Foundation, the Educator of the Year Award from the Wisconsin Academy of Family Physicians, and the Baldwin E. Lloyd, MD, Clinical Teacher of the Year Award from the University of Wisconsin Department of Family Medicine.
Bill has been on the teaching faculty of more than 40 intensive seminars presented by IPFCC. He is also an officer of the Board of Directors of the IPFCC.