IPFCC provides national and international leadership for advancing the practice of patient- and family-centered care. By promoting collaborative, empowering partnerships among patients, families, and health care professionals, IPFCC facilitates patient- and family-centered change in all health care settings.
Listed below are selected current initiatives that IPFCC leads.
PFCC Comprehensive Organizational Assessments and Follow-up Support
IPFCC’s staff and senior faculty collaborate with health care systems and hospitals in conducting comprehensive organizational assessments of current PFCC policy, program, and practice. This process involves a review of key documents, an online organizational leadership self-assessment survey, virtual interviews and/or in-person site visits, and a PowerPoint report and debriefing that includes a review of the organization’s strengths, opportunities for improvement, and recommendations as well as follow-up support. Jefferson Health in Pennsylvania and New Jersey, Provincial Health Services Authority in British Columbia, and Children’s Hospital at Montefiore in the Bronx, New York are among the organizations engaging in this assessment and technical assistance process.
Listed below are selected current initiatives in which IPFCC assists others through consulting, training and technical assistance, and coaching.
Update of the Patient-Centered Outcomes Research Institute (PCORI) Engagement Rubric
IPFCC serves as a subcontractor to the American Institutes for Research (AIR) to assist in the development and dissemination of an updated Engagement Rubric for PCORI. The updated resource offers guidance for implementing evidence-based engagement practices, facilitate sustainable and equitable partnerships among researchers and partners, and share new lessons learned. The resource was updated using knowledge obtained through a literature search, partner interviews and focus groups, and a convening. The updated resource was designed to guide PCORI research and engagement projects and the broader field of partner-driven research as well as advance the science of engagement.
Development & Management of HSII Learning Network
IPFCC serves as a subcontractor to the American Institutes for Research (AIR) to support a learning network for healthcare systems across the U.S. The network provides systems with a variety of collaborative learning opportunities including hosting virtual learning sessions, Affinity group meetings, office hours, and topic webinars. The learning network creates a community for HSII participants to share learnings—with each other, PCORI, and the broader U.S. healthcare system—to support implementation projects that successfully integrate and adapt evidence from PCORI-funded research into real-world practice.
Family-Centered Care: Knowledge, Attitudes, and Practices
IPFCC is partnering with the Ronald McDonald House Charities® Center at the University of California San Francisco to conduct and report on a global survey of hospital leaders’ perceptions of family-centered care knowledge, attitudes, and practices in their children’s hospital or general hospital with pediatric specialty care. De-identified findings from the survey, that will be shared in 2024, will help build awareness and understanding of family-centered pediatric care and facilitate adoption and improvement of family-centered practices.

Partnering with RMHC Global in Advancing Family-Centered Care
Since 2018, IPFCC has partnered with Ronald McDonald House Charities Global in its efforts to enhance family support provided by its chapters and advance the practice of family-centered care in RMHC partner hospitals. In recent years, IPFCC has conducted hospital site visits and participated in Family-Centered Country-Wide Conferences, in person or virtually, in the Netherlands, Ukraine, Romania, Poland, Uruguay, and Portugal.
Texas Collaborative for Healthy Mothers and Babies
IPFCC is working as a subcontractor to assist TCHMB with building capacity to advance a culture of health equity in their perinatal quality care collaborative’s work. IPFCC is working closely with the TCHMB team throughout this five-year project to incorporate actionable steps to engage clinicians, midwives, doulas, patients, and families and develop partnerships to enhance equitable, quality, and respectful care for mothers and babies in Texas. TCHMB recognizes the need to increase QI initiatives that focus on eliminating disparities and to increase statewide reach to ensure engagement of facilities that serve disproportionately impacted populations.

Vermont Oxford Network
Since 2018, IPFCC has been serving as Expert Faculty and Consultant for the Vermont Oxford Network Newborn Improvement Collaboratives for Quality. A new collaborative, All Care Is Brain Care began in 2023 and is centered on neuroprotection of infants. Modeling authentic partnerships, family partners are integrated in QI teams, as faculty in each topical homeroom, and as lead faculty for the collaboratives. IPFCC provides education, resources, and coaching for the collaboratives.
Learn more about IPFCC’s Recently Completed Initiatives.
Learn more about IPFCC’s Past Initiatives.